Hello Can You Help Me To Arrange Open Access Dataset For ALS Disease With Any Two Modality EHR , EMG Or Speech

Hi everyone,

I’m currently working on a research project focused on Amyotrophic Lateral Sclerosis (ALS) and I’m trying to build a multi-modal dataset for experimentation.

I’m specifically looking for open-access datasets (or datasets with relatively easy approval) that include any two of the following modalities:

• EHR / clinical data (patient records, ALSFRS scores, demographics, etc.)
• EMG (electromyography signals)
• Speech / voice recordings

So far I’ve explored sources like EverythingALS (speech + patient-reported data) and some EMG datasets on Kaggle, but I’m struggling to find well-structured or commonly used combinations across modalities.

If anyone here has:

• Links to relevant datasets
• Suggestions of repositories or research groups sharing data
• Experience combining datasets for ALS (especially multi-modal setups)

I’d really appreciate your guidance.

Also open to any advice on dataset alignment / fusion strategies if you’ve worked on something similar.

Thanks in advance!