{"id":40458,"date":"2026-04-17T15:13:35","date_gmt":"2026-04-17T13:13:35","guid":{"rendered":"https:\/\/www.graviton.at\/letterswaplibrary\/hello-can-you-help-me-to-arrange-open-access-dataset-for-als-disease-with-any-two-modality-ehr-emg-or-speech\/"},"modified":"2026-04-17T15:13:35","modified_gmt":"2026-04-17T13:13:35","slug":"hello-can-you-help-me-to-arrange-open-access-dataset-for-als-disease-with-any-two-modality-ehr-emg-or-speech","status":"publish","type":"post","link":"https:\/\/www.graviton.at\/letterswaplibrary\/hello-can-you-help-me-to-arrange-open-access-dataset-for-als-disease-with-any-two-modality-ehr-emg-or-speech\/","title":{"rendered":"Hello Can You Help Me To Arrange Open Access Dataset For ALS Disease With Any Two Modality EHR , EMG Or Speech"},"content":{"rendered":"<p><!-- SC_OFF --><\/p>\n<div class=\"md\">\n<p>Hi everyone,<\/p>\n<p>I\u2019m currently working on a research project focused on <strong>Amyotrophic Lateral Sclerosis (ALS)<\/strong> and I\u2019m trying to build a <strong>multi-modal dataset<\/strong> for experimentation.<\/p>\n<p>I\u2019m specifically looking for <strong>open-access datasets<\/strong> (or datasets with relatively easy approval) that include <strong>any two of the following modalities<\/strong>:<\/p>\n<p>\u2022 EHR \/ clinical data (patient records, ALSFRS scores, demographics, etc.)<br \/> \u2022 EMG (electromyography signals)<br \/> \u2022 Speech \/ voice recordings<\/p>\n<p>So far I\u2019ve explored sources like EverythingALS (speech + patient-reported data) and some EMG datasets on Kaggle, but I\u2019m struggling to find <strong>well-structured or commonly used combinations<\/strong> across modalities.<\/p>\n<p>If anyone here has:<\/p>\n<ul>\n<li>Links to relevant datasets<\/li>\n<li>Suggestions of repositories or research groups sharing data<\/li>\n<li>Experience combining datasets for ALS (especially multi-modal setups)<\/li>\n<\/ul>\n<p>I\u2019d really appreciate your guidance.<\/p>\n<p>Also open to any advice on <strong>dataset alignment \/ fusion strategies<\/strong> if you\u2019ve worked on something similar.<\/p>\n<p>Thanks in advance!<\/p>\n<\/div>\n<p><!-- SC_ON -->   submitted by   <a href=\"https:\/\/www.reddit.com\/user\/Hungry-Objective-173\"> \/u\/Hungry-Objective-173 <\/a> <br \/> <span><a href=\"https:\/\/www.reddit.com\/r\/datasets\/comments\/1snzg7r\/hello_can_you_help_me_to_arrange_open_access\/\">[link]<\/a><\/span>   <span><a href=\"https:\/\/www.reddit.com\/r\/datasets\/comments\/1snzg7r\/hello_can_you_help_me_to_arrange_open_access\/\">[comments]<\/a><\/span><\/p><div class='watch-action'><div class='watch-position align-right'><div class='action-like'><a class='lbg-style1 like-40458 jlk' href='javascript:void(0)' data-task='like' data-post_id='40458' data-nonce='9941108d62' rel='nofollow'><img class='wti-pixel' src='https:\/\/www.graviton.at\/letterswaplibrary\/wp-content\/plugins\/wti-like-post\/images\/pixel.gif' title='Like' \/><span class='lc-40458 lc'>0<\/span><\/a><\/div><\/div> <div class='status-40458 status align-right'><\/div><\/div><div class='wti-clear'><\/div>","protected":false},"excerpt":{"rendered":"<p>Hi everyone, I\u2019m currently working on a research project focused on Amyotrophic Lateral Sclerosis (ALS) and I\u2019m&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[85],"tags":[],"class_list":["post-40458","post","type-post","status-publish","format-standard","hentry","category-datatards","wpcat-85-id"],"_links":{"self":[{"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/posts\/40458","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/comments?post=40458"}],"version-history":[{"count":0,"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/posts\/40458\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/media?parent=40458"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/categories?post=40458"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.graviton.at\/letterswaplibrary\/wp-json\/wp\/v2\/tags?post=40458"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}